Sanofi US has issued a voluntary nationwide recall of Auvi-Q due to a potential inaccurate dosage delivery. Please share this with everyone you know! Anaphylaxis is caused by many types of allergies, food being one of them, and epinephrine auto-injectors are life saving medications that are essential in an emergency.
My parents, husband and I recently vacationed at the beach and had a great time. However, it takes a ton of preparation, thought, and luggage to have an allergy friendly vacation. While food is an obvious part of the process, there are other things that many of us have to think about when planning to be away from home.
I once had a reaction to a couch that had sunscreen in the fabric, and couch foam and fabric can also contain soy. I always bring a sheet to place over the couch along with a throw blanket in cooler months.
I always bring some king size sheets so I am prepared for whatever size bed is available. I also bring my own pillows and blankets.
My own toilet paper is a critical part of packing.
I bring my own towels from home that are washed in my laundry detergent.
Housekeeping is very tricky when you travel with your own toiletries and sheets. When my husband and I travel alone, I request no housekeeping. When I travel with others that want housekeeping, I put a sign on my bed so that sheets are not mistakenly changed.
I also bring my own soap as well as a sign for a bathroom requesting no housekeeping so that my toilet paper, towels, etc. do not get mixed in.
I try to drink from my own glass bottles whenever I can, but the recent floods in South Carolina made it necessary to drink from plastic water bottles. I labeled my bottles with my initials. This is not just to keep from drinking after someone else to avoid germs. Drinking after someone can expose you to allergies based on what they have been eating.
Other items I took with me were dishwasher detergent, dishwashing liquid, household cleaner, and laundry detergent.
For someone that is newly diagnosed with food allergies, planning to be away can be a daunting task. The good news is that is gets easier and easier. Try making a list of everything that you pack for your first vacation, save it on your computer, and make changes to it each time you travel. It will take the stress out of forgetting something, because you will have everything written down.
I can also tell you that now that I am accustomed to bringing my own personal items, I am able to relax so much more. There’s something very comforting about being surrounded by your own things from home, and you can feel like you are really creating a safe environment.
Calling All Food Allergy Survivors: What other items do you enjoy traveling with that help keep you safe?
It all started my junior year in high school. At the time was playing 3 sports, led in numerous clubs and organizations, and somehow managed to keep a 4.0 GPA. One day, the school held it’s annual blood drive. I showed up eager to donate to the cause. When it was time to draw blood, The nurse pricked my finger to check my iron levels. With a look of motherly concern she eyed the screen, then me, then the screen again. She tells me not only am I iron deficient and anemic, but I have the lowest reading of all the students she tested today.
Then came the fatigue. I went from straight A’s to was now nodding off in class, grades slipping. Athleticism began to wane. Then came the stomach cramps from hell that kept me up many nights. This was much more than your average tummy ache and it was time visit a doctor.
Several colonoscopies and months later I was diagnosed with Chron’s disease – An incurable, unpredictable form of Inflammatory bowel disease (IBD). Not the best news for a kid one year away from attending college. A kid who is more than ready to fully experience the “college life”. This made hiding my Crohn’s from others seem like the most viable option.
Throughout the rest of high school and into my early college years, I longed to just be “normal” person. My remission periods provided a tantalizing glimpse of this normalcy making it very easy to forget I even have the disease. Crohn’s was knocking at the door and instead of answering, I waited for it to leave, Unfortunately, Crohn’s was not playing ‘ding-dong ditch’. Late in the fall of my junior year, the disease kicked down the door.
I woke up feeling extremely bloated and nauseous. I skipped class that day and decided to get rest. I made sure not to skip any meals because refusing to eat exacerbated issues in the past. Dinner rolled around and I was still feeling strange. I felt so full and started developing what some like to call a “food baby”. This was particularly strange because I didn’t eat much that day. It grew larger as time passed and with it, more pain. I ended up being rushed to the emergency room that night for a complete intestinal blockage. The doctor said it was so severe that if I had waited a few more hours the toxins would have caused my liver to fail and my heart to stop. As I lay there in the hospital bed I realized than in order to live a long and prosperous life, I must control Crohn’s and refuse to let it control me. The most useful tool in any fight is realization that you’re not alone in it. That is why it’s important to join a support system full of people that are going through your struggle. That is also why, even though I don’t necessarily have a food allergy, I fully support Alanna’s vision with AllerThrive.
I’m happy to admit my days of hiding are over. I keep a food diary now which helps me determine what foods cause my flare-ups. I also joined the Colitis and Crohn’s Foundation of America in hopes of starting a chapter at my college to spread awareness for IBD. I’m doing a better job of saying no to my trigger foods, even when tempted with warm, southern-fried cooking I was raised on. But this growth wouldn’t be possible without the influence of people like Alanna. She has this optimism about her food allergy that is infectious and inspiring. That kind of resilience is to be commended.
I have seen a lot of incorrect information out there on social media sites. I think a lot of users believe that because a board is by invitation only or a “closed” board, it somehow makes the information more reliable. Here’s a great example of a scenario that I see very often on food allergy boards:
Question: Have any of you found a specific product that is free from (insert your allergy here)?
Many members begin to comment, and some of them may be correct, but many are not. Ask yourself the following questions:
- Did this person very recently call the manufacturer?
- Did this person ask the right questions of the manufacturer?
- Do you know that the person responding to the post has the same level of sensitivity as you do?
- Is this person a legitimate food allergy sufferer or a company rep trying to push a product?
- Do you trust someone you do not know to give you the OK to put a product on or in your body?
Chances are, the advice you are getting may not be as reliable as you had hoped. However, there are situations where asking this question in a social media group can be helpful. If you are planning to take the product list you are given on the board and call each manufacturer, then this information may be useful as a starting point to do your own research.
. It’s important to make sure that the phone calls you make give you the information you need to avoid an allergic reaction.
To finish off my birthday week, my family and I visited North Carolina yesterday to get away from the heat and have some fun. We visited a beautiful waterfall and had a GREAT time at a gem mine. There was only one problem: While the actual gem mine was outdoors, the indoor store was running a machine that was pumping some kind of nice smelling aroma through the air.
When I arrived and spotted the machine, I immediately left the building and the clerk turned off the machine. Even though the clerk turned off the machine, I left because I knew there could still be allergenic particles in the air. After we finished gem mining, I briefly went inside to discuss a black star sapphire that I wanted for a necklace, but the machine had been turned back on again. I left as quickly as I could, but it was too late. A few minutes later, I was feeling itchy.
There are many types of stores that can pose issues for those with food allergies, because many foods are used in the making of air purifiers, cleaning products, and the actual merchandise. This can apply to any store, restaurant, your favorite fitness center, massage therapist, yoga class, or even your friends and family’s homes.
If you are entering a new area and you have someone with you, ask them to go scope it out for you first. Keep in mind the following things:
- How does the air smell? While some allergens will not produce a smell, an aromatic shop or home could signal that it is time to ask more questions.
- Be aware of any area that calls for a shop to spray cleaners on a surface. I have had employees spray cleaners right in front of me and accidentally on me. (And yes, I had a reaction.) This may be a jewelry store cleaning their counters, a restaurant cleaning their tables, or simply someone washing the windows.
- Does the store sell candles, home fragrances, or potpourri? Remember that those products have likely been sitting there for quite some time in an enclosed space.
- If the store sells food, do you see any bulk bin aisles that could have products like flour or other small items with your allergens that could easily get into the air?
- Make sure you wash newly purchased clothing in your own safe laundry detergent before wearing.
- For me, I have to carry toilet paper and soap with me wherever I go, so certain allergens may call for you to avoid using a store’s personal care products.
By being aware of our surroundings, we can better enjoy our shopping experiences. I have to admit the retail therapy is one of my favorite ways to relieve stress, so get out there and shop safely!
Calling All Soyvivors: Share your shopping advice in the comments below!
My husband and I recently vacationed at Pawley’s Island, South Carolina. Pawley’s Island is below Myrtle Beach and part of South Carolina’s Grand Strand. Even if you have never visited South Carolina’s beaches, you probably know that these beaches are some of the most highly rated in the world.
What I love about the Myrtle Beach area is that there is something for everyone to do at any time of the day or night. There’s great shopping, family activities, and lots to do even if it’s raining. This means that for those of us who are looking for fun that doesn’t revolve around food, there is plenty to do! Among my favorite things to do are Brookgreen Gardens, Huntington Beach State Park, Myrtle Beach State Park, the two Tanger Outlets, and Murrell’s Inlet. Other attractions include Broadway at the Beach and Barefoot Landing, two shopping, dining and entertainment centers.
The best thing about Myrtle Beach for a food allergy sufferer is that there are tons of restaurants and several different kinds of grocery stores. You will find Kroger, Fresh Market, Publix, Lowe’s Foods, Bi-Lo, and many other stores. All you need is room with a small kitchen, and you can easily make the meals that you need.
There are also many restaurants with allergen menus. Chains include Olive Garden, Red Robin, Chipotle, McAlister’s Deli, Mellow Mushroom, Ruby Tuesday, and many, many others.
For those of you that do not have children in school, the lodging rates in the Myrtle Beach area are much lower in spring and fall when the weather is still lovely and not so crowded. That also means that grocery stores are more likely to have what you need in stock, and restaurants are less busy and able to give you more attention. Otherwise, there are many areas of the Grand Strand that are family friendly even in the summer. I highly recommended the Myrtle Beach area for a great time with the amenities you need for a fun and safe vacation!
Calling all Soyvivors: What is your favorite place to vacation?
Last month, my husband and I took our first week-long vacation as a couple. Sure, we have had family vacations and long weekends away, but this was the first time that he and I had embarked on a full week away from home just the two of us since my soy allergy diagnosis.
If you have read my previous vacation posts, you know that eating out has always been a huge part of our family tradition. Why cook, right? It’s vacation from everything including cooking! This year, I knew that had to change, but I also knew that I wasn’t about to spend any more precious vacation time in the kitchen than I had to.
Even though I have dealt with food allergies for years, soy was very different for me. It changed everything from what products I ate to what products I used in my house. At first, I honestly thought that I would never be able to travel again. I could not fathom how I would actually be able to relax with so much new responsibility and safety considerations.
As time passed, my confidence grew, and eventually I began to venture out. I wasn’t completely sure that I was ready for a long vacation, but it turned out that it was the most relaxing vacation that I have EVER had. Here’s what I learned:
- Yes, there is a LOT more packing involved. Towels, sheets, detergent, soap, toilet paper, non-perishable food, and coolers were among the many things that I took with me. The upside is that I found myself surrounded by my own things, and that made me feel at home and relaxed. It was well worth the effort!
- I really thought I would spend a good bit of time in the kitchen, but preparation in advance proved otherwise. I knew what grocery stores were in my area and I came prepared with a meal plan. I set out to cook dishes that would make great leftovers and dirty very few dishes. I never thought I could eat such great meals with such little effort.
- Because I prepared my own meals, I did not send my mind and body into a frenzy wondering if this would be the meal where the restaurant would make a mistake and send me into an allergic reaction. The result was consistent peace throughout the week.
- We found one restaurant that I was very comfortable with due to their relationship with local food sources, and we made it count. We ate an incredible meal, savored every bite, and made it a special event to celebrate rather than just another place to eat.
- By eating at our condo, we eliminated the time driving to and from restaurants and waiting for elaborate dishes to be prepared. Instead, we spend more quiet time together, and we were able to eat our meals on a cozy screened-in porch. It was relaxing and romantic, and left us more time to spend gazing at the beauty of the ocean.
For the first time, I feel like I was able to truly rejuvenate during my vacation. The key for me was this: I had to let completely let go of my traditions and habits related to food. Giving up my previous relationship with food has allowed me to focus on what truly makes me happy, and I am quickly learning that my happiness has NOTHING to do with what I am eating!